"Mirar las cosas de cara, ser capaces de sorprendernos, tener curiosidad y un poco de coraje; saber preguntar y saber escuchar; evitar los dogmas y las respuestas automáticas; no buscar necesariamente respuestas y aún menos fórmulas magistrales" (Emili Manzano)

viernes, 19 de octubre de 2018

FEMINISMO Y CÁNCER DE MAMA


Uno de los graves problemas del feminismo es creer que los valores y aspiraciones de todas las mujeres son similares. Cómo debe ser una mujer en su relación con el mundo es muy diferente para una anciana anglosajona, una académica en Nigeria, una adolescente turca, una campesina vietnamita, .... 

Sin embargo, hay muchos tipos de feminismos. El de la mujer blanca occidental que le dice a la africana  cómo debe ser mujer; el de la académica  que le dice a una futura mamá qué papel debe jugar la crianza en su vida; el de la profesora que le dice a la adolescente cómo debe relacionarse social y sexualmente con los chicos; etc.  Incluso las hay que defienden que "El feminismo es una teoría, el lesbianismo la práctica"  (Ti-Grace Atkinson,1970s)  o que "Las feministas que duermen con hombres están entregando sus energías más vitales al opresor"  (Jill Johnson, Lesbian Nation,1973).  En conclusión, los feminismos caen en la más burda de las paradojas; resultan odiosamente paternalistas.

Con paternalismo feminista me refiero a la reducción de la libertad y autonomía de ciertos grupos sujeto con la justificación utilizada de la protección de la persona o grupo frente al posible daño que esas personas pudiera causarse a sí mismo en caso de disponer de mayor autonomía y libertad. 

Estos aspectos también se reflejan en la medicina, y afectan a numerosos órdenes de la psiquiatría (p.e. depresión), ginecología y obstetricia (p.e., parto, aborto), dolor crónico, ... 

En este caso me ha parecido muy representativo el artículo de Barbara Ehrenreich, We need a new women's health movement (2009)The uproar over mammogram guidelines shows how the feminist movement has strayed



Has feminism been replaced by the pink-ribbon breast cancer cult? When the House passed the Stupak amendment, which would take away abortion rights from women who get any government help purchasing insurance, the female response ranged from muted to inaudible.
Soon after, when the U.S. Preventive Services Task Force recommended that regular screening mammography not start until age 50, all hell broke loose. Sheryl Crowe, Whoopi Goldberg and Olivia Newton-John raised their voices in protest; a few dozen non-boldface women picketed the Department of Health and Human Services. If you didn't look too closely, it almost seemed as if the women's health movement of the 1970s and 1980s had returned in full force.
Never mind that Dr. Susan Love, author of what the New York Times dubbed "the bible for women with breast cancer," endorses the new research-based guidelines along with leading women's health groups such as Breast Cancer Action, the National Breast Cancer Coalition and the National Women's Health Network. For years, these groups have been warning about the excessive use of screening mammography in the United States, which carries its own dangers and leads to no detectable lowering of breast cancer mortality.
Nonetheless, on CNN last week, we had the unsettling spectacle of Cindy Pearson, the National Women's Health Network executive director and noted women's health advocate, speaking out in favor of the new guidelines, while ordinary women lined up to attribute their survival from the disease to mammography. Once upon a time, grass-roots women challenged the establishment by figuratively burning their bras. Now, in some masochistic perversion of feminism, they are raising their voices to yell, "Squeeze our breasts!"
When the Stupak anti-choice amendment passed, and so entered the healthcare reform bill, no congressional representative stood up on the floor of the House to recount how access to abortion had saved her life or her family's well-being. And where were the "tea baggers" when we needed them? If anything represents the true danger of "government involvement" in healthcare, it's a healthcare reform bill that, if the Senate enacts something similar, could snatch away all but the wealthiest women's right to choose.
It's not just that abortion is deemed a morally trickier issue than mammography. To some extent, pink-ribbon culture has replaced feminism as a focus of female identity and solidarity. When a corporation wants to signal that it's "woman friendly," what does it do? It stamps a pink ribbon on its widget and proclaims that some minuscule portion of the profits will go to breast cancer research. I've even seen a bottle of Shiraz called "Hope" with a pink ribbon on its label -- but no information, alas, on how much you have to drink to achieve the promised effect.
When Laura Bush traveled to Saudi Arabia in 2007, what grave issue did she take up with the locals? Not women's rights (to drive, to go outside without a man, etc.), but breast cancer awareness. In the post-feminist United States, issues such as rape, domestic violence and unwanted pregnancy seem to be too edgy for much public discussion, but breast cancer is pure apple pie.
So welcome to the Women's Movement 2.0: Instead of the proud female symbol -- a circle on top of a cross -- we have a droopy ribbon. Instead of embracing the full spectrum of human colors -- black, brown, red, yellow and white -- we stick to princess pink. While we used to march in protest against sexist laws and practices, now we race or walk "for the cure."
Look, the issue here isn't healthcare costs. If the current levels of screening mammography demonstrably saved lives, I would say go for it and damn the expense. But the numbers are increasingly insistent: Routine mammographic screening of women under 50 does not reduce breast cancer mortality in that group, nor do older women necessarily need an annual mammogram. In fact, the whole dogma about "early detection" is shaky, as Susan Love reminds us: The idea has been to catch cancers early, when they're still small, but some tiny cancers are viciously aggressive and some large ones aren't going anywhere.
One response to the new guidelines has been that numbers don't matter -- only individuals do -- and if just one life is saved, that's good enough. So OK, let me cite my own experience. In 2000, at the age of 59, I was diagnosed with Stage II breast cancer on the basis of one dubious mammogram followed by a really bad one, followed by a biopsy. Maybe I should be grateful that the cancer was detected in time, but the truth is, I'm not sure whether these mammograms detected the tumor or, along with many earlier ones, contributed to it. One known environmental cause of breast cancer is radiation, in amounts easily accumulated through regular mammography.
La mamografía como causa de cáncer de mama

And why was I bothering with this mammogram in the first place? I wanted to get my hormone replacement therapy, or HRT, prescription renewed, and the nurse practitioner wouldn't do that without a fresh mammogram.
As for the HRT, I was taking it because I had been convinced by prevailing medical propaganda that HRT helps prevent heart disease and Alzheimer's. Then in 2002, we found out that HRT is itself a risk factor for breast cancer (as well as being ineffective at warding off heart disease and Alzheimer's). So did I get breast cancer because of the HRT -- and possibly because of the mammograms themselves -- or did the HRT lead to the detection of a cancer I would have gotten anyway?
I don't know, but I do know that that biopsy was followed by the worst six months of my life, spent bald and barfing my way through chemotherapy. This is what's at stake here -- not only the possibility that some women may die because their cancers go undetected, but that many others will lose months or years of their lives to debilitating treatments for radiation-caused cancers or, possibly, cancers that didn't require treatment at all.
What we really need is a new women's health movement, one that's sharp and skeptical enough to ask all the hard questions: What are the environmental (or possibly lifestyle) causes of the breast cancer epidemic? Why are existing treatments such as chemotherapy so toxic and heavy-handed? And, if the old narrative of cancer's progression from "early" to "late" stages no longer holds, what is the course of this disease (or diseases)?
What we don't need, no matter how pretty and pink, is a ladies' auxiliary to the cancer-industrial complex.

Humorada feminista



viernes, 12 de octubre de 2018

ENFERMO O SUPERHÉROE


Alexander J. Honnold es un escalador estadounidense de grandes paredes en el estilo solitario libre. Durante la presentación de algunas de sus hazañas en el conocido programa Esports 3, de TV3, el presentador señalaba que se había realizado un estudio neurocientífico sobre su respuesta al miedo.




Ante la aparente falta de miedo, los investigadores se centran en la amígdala; dentro de un aparato de Resonancia Magnética, le muestran una serie de imágenes con la intención de generar respuestas en la amígdala: desde cadáveres descuartizados a heces, pasando por otras de caracter más sensual o deportivas. La conclusión: la amígdala de Honnold no se activa, a diferencia de un sujeto control (escalador de la misma edad)

ABSENCE OF FEAR: Honnold’s brain (left) with a control subject’s (right),
a climber of a similar age. As both climbers look at the arousing images,
 the control subject’s amygdala glows, while Honnold’s remains inert,
 showing no activity whatsoever.

La lectura del presentador es que se trata de un superhéroe, alguien que no tiene miedo.Sólo más tarde añade, "o que tiene una enfermedad". "puede haber tenido una lesión en la amígdala".

Este tipo de narrativas nos muestra la fragilidad del concepto científico y lego del concepto de enfermedad. Como se ha mostrado con diferentes ejemplos en este blog, fenómenos como la sordera, la obesidad, la homosexualidad, el TDAH, la inteligencia baja, la pedofilia, etc, no se pueden considerar una enfermedad o no en función de la reducción del constructo a un fenómeno biológico distinto. Si la homosexualidad tiene una elevada heredabilidad, o se asocia a una variante cromosómica o tiene asociada alguna variante anatómica no son elementos suficientes ni necesarios para catalogar la conducta como patológica.